Young and Surviving CancerMay 25, 2013 04:21PM ● By Susan Meyers
“I knew that life as I knew it would never be the same,” she recalls. “I was so shocked. Why me? Why would I have these beautiful kids and then so soon after find this out?”
As it turns out, the experience has come to be one of the most positive things that has happened in Wagner-Connolly’s life. It also became the springboard that put her goals in motion.
“It has helped guide me in my life and my career,” she says. “It opened my eyes to how much worse things could be and inspired me to do more with my life. Through cancer, I realized that I wanted to go into public health where I can help others. I know I am a better mom, friend, teacher, nurse, wife—everything. All of my roles have been affected in a positive way because of [cancer].”
On March 1, Wagner-Connolly celebrated her four-year anniversary of being a cancer survivor, and while she has managed to make it a positive in her life, she acknowledges that it was also one of the most difficult and trying times in her life.
“It has helped guide me in my life and my career. It opened my eyes to how much worse things could be and inspired me to do more with my life." - Amberly Wagner-Connolly, survivorThe number of young adults who are diagnosed with cancer is very low, usually less than 5 percent, depending on the cancer, says Margaret Block, M.D., a medical oncologist at Nebraska Cancer Specialists. But for those who do receive the disturbing news, it can be a very emotional and stressful journey.
Like many young cancer patients, Wagner-Connolly experienced the challenges and emotional turmoil common among people her age. She struggled with the shock of being diagnosed at such an early age; she feared not being around to see her children grow up; and she grew weary from juggling two tiny twins and a four-year-old daughter when she could barely take care of herself.
Her family and friends and people she didn’t even know became her biggest supporters. Her husband worked nights and was able to help as much as he could during the day. Her mother and mother-in-law also provided help when they could and were there for emergencies.
Her co-workers at The Nebraska Medical Center held a fundraiser for her. Several friends of her sister who work at Lincoln Financial Group also organized a fundraiser/auction and raised more than $6,000 to help her with her medical bills.
This touched Wagner-Connolly greatly and was a turning point that helped her keep fighting. “It made me see the good in the world,” she says. “When complete strangers reached out to help me, I became determined that I had to do something with my life to make an impact like they had for me.”
"The number of young adults who are diagnosed with cancer is very low, usually less than 5 percent, depending on the cancer." - Margaret Block, M.D., medical oncologist with Nebraska Cancer SpecialistsDetermined to not let her surgery and chemotherapy treatment slow her down, Wagner-Connolly was able to continue her master’s studies, finishing on her target date. She also kept a challenging work schedule as a nurse at The Nebraska Medical Center.
Being able to maintain some control over other parts of her life was important to her mental well-being. There were days during her six-month chemotherapy regimen when she felt as if she couldn’t go on. “I just had to take it day by day,” she recalls. “I did a lot of reality checks.”
Having goals—such as seeing her children grow up, completing her master’s degree, and wanting to live to make a difference in the world—fueled her will to keep fighting.
“Amberly did an amazing job,” says Peggy Jarrell, LCSW, OSW-C, a licensed clinical social worker and a certified oncology social worker at Nebraska Methodist Hospital, who worked with her during her treatment. “Motherhood can be stressful enough…put cancer on top of that, and you have a lot to deal with. [She] was able to maintain her own and still stay active in the outside world.”
Jarrell says it’s very important for cancer patients to establish a good support network of people and friends who can help them through this period. She also recommends having a designated support person who can accompany them at appointments and act as their second set of ears. Many hospitals now provide nurse navigators to help patients “navigate” the health care system.
Stacy Patzloff, RN, BSN, a certified oncology nurse navigator at Alegent Creighton Health, says nurse navigators work closely with the patient and the cancer support team to make sure everything is coordinated. They’re there to attend appointments with them and to act as a support person who is available 24/7.
“Motherhood can be stressful enough…put cancer on top of that, and you have a lot to deal with.” - Peggy Jarrell, licensed clinical social worker and certified oncology social worker with Nebraska Methodist HospitalSupport is key, agrees Dr. Block, whether it’s family, friends, a support group, or seeking the help of a psychologist or psychiatrist. Exercise can also be a good thing and may help you get through chemotherapy with less fatigue, she notes.
Other tips that may help young patients get through treatment and recovery include:
- Don’t be afraid to ask for help from others.
- Take time for yourself if you’re having a bad day.
- Eat a healthy diet. Seek the nutrition advice of dietitians on staff at the hospital where you are receiving treatment.
- Take care of your physical well-being. Programs like Alegent Creighton Health’s Image Recovery program provide cancer patients with wigs and helps them deal with hair, nail, and skin problems that are unique to cancer patients.
“I know how lucky I am,” she says. “I want to make a difference in this world. No one should have to face cancer and certainly not a young mom.”
And for those who do, Wagner-Connolly is committed to easing that journey.